WEBINAR: Shared decision making for people with a life-changing illness

C4CC is hosting a webinar with Compassion in Dying on Thursday 27th September on shared decision making when someone has a life-changing illness.

This online, interactive session will bring together personal, professional and clinical insight into shared decision making, focusing on people living with life-changing illness. The session will consider the experiences of different communities and patient groups as well as carers; clinical barriers and enablers; and offer practical tools for implementation.

Presenters include:

  • Lynne Craven, lived experience of MS and co-founder of the Self-Management Partnership
  • Dr Gehan Soosaipillai, oncologist and clinical research fellow at Imperial College
  • Natalie Koussa, Director of Partnerships and Services, Compassion in Dying

The webinar takes place 1pm to 2pm, to book, please register here.

Shared decision making is part of a wider drive to personalise health and social care which aims to stimulate a shift in culture, power and decision-making from a paternalistic model of care to one where clinicians and patients act as equal partners.

It is where patients, carers and clinicians work together, as equals, to decide what tests and treatments are most suitable bearing in mind the patient’s individual circumstances. It brings together the patient and/or carer’s expertise and what is important to them together with the clinician’s knowledge about what is known about the benefits and risks of the available options.

Shared decision making is key component of NHS England’s comprehensive model for personalised care which sets out an all age, whole population approach to personalised care. The model brings together shared decision making; choice and control; personalised care and support planning; social prescribing and community-based support; supported self-management and personal health budgets to provide a single operating model for personalised care across the health and care system.

Compassion in Dying is a registered charity that helps people prepare for end of life. It provides support to help people plan for their treatment and care, in case a time comes when they can’t make decisions. Compassion in Dying specialises in supporting people to make Advance Decisions (‘Living Wills’) and to talk about their goals and priorities when living with a life-changing illness.

You can find out more about Compassion in Dying and its work at www.compassionindying.org.uk

C4CC will be hosting a number of webinars over the coming months focusing on making personalised care a reality for all. If you would like to present a session then please contact laura.bimpson@nhs.net

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