Tag Archives: TLAP

Making it Real launched

C4CC is delighted to this week launch jointly launch with Think Local Act Personal (TLAP), the new Making it Real framework for how to do personalised care and support

Making it Real is for people working in health, adult social care, housing, and for people who access services.  It is an easy to use, jargon-free set of personalised principles that focus on what matters to people.

It was launched on Thursday 11 October to more than 100 senior leaders from across the health, care and housing sectors at an event which was attended by the Minister for Care, Caroline Dinenage.

In her address to delegates, the Minister, said: “When it comes to wellbeing, it’s vital that our services look at people’s needs as a whole, from social care to health and housing. That’s why we want to put power back into the hands of people accessing services, their carers and families – by personalising care and focussing it around individual needs – so we can help people to live happier and more independent lives.

“The new Making it Real guide is an important and practical resource to help make personalised care a reality.”

Built around six themes, Making it Real describes what good looks like from an individual’s perspective and what organisations should be doing to live up to those expectations. It supports coproduction between people, commissioners and providers.

Making it Real is a voluntary commitment with access to free materials and support. If you sign up to get involved, you decide how to make best use of it.

Making it Real has been co-produced by Think Local Act Personal and C4CC, with input from partners, organisations and individuals, including the National Co-production Advisory Group (NCAG).

C4CC’s co-chair, Anna Severwright describes the difference Making it Real would make to her life in the short film below.

C4CC co-chair, Nigel Mathers adds: “We are delighted that the updated Making it Real now includes a focus on health. I would urge all organisations serious about delivering personalised healthcare to make use of this fantastic resource.”

James Sanderson, Director of Personalised Care at NHS England, says: “The NHS is on a journey to make personalised care business as usual across the health and care system. This will require a different relationship between people and professionals, with a shift in power and decision making that enables people to have a voice and be connected to their communities. Making it Real exemplifies this vision and is a practical tool that will help to achieve it.”

Read more from James about Making it Real in this blog post.

Visit the Making it Real website to download the framework and to sign up and commit to ‘Making it Real’ in your organisation.

 

Being positive about being positive

Often when we talk about HIV today we forget that for many people and communities, stigma is real. It’s still affecting people and their communities. Moreover, stigma is a tricky little beast; good at hiding.

Throughout the many years that we’ve been challenging these acts of disability-related hate crimes, it seems that many people have not been educated or exposed to the 21st century facts about living with HIV.

This is where stigma gets its mojo – when people perpetrate unkind acts that negatively affect others.

The global management of HIV is one reason people have told me why they haven’t felt able to take a test to find out their status. Their fear of a positive diagnosis, even within the UK where we have the Equalities Act and a strong evidence-based community, stems from personal fear.

Among the many labels out there, we now have another label for people –‘undetectable’. But for me, positive is positive and I ignore the medical narratives of infectious and undetectable.

Labels don’t help anyone manage the challenges of living with HIV – the label fuels the stigma. So, my view is that I’m being positive about being positive.

Too many of our brothers and sisters have poor health as well as psychological and mental ill-health issues related to that stigma.

Stigma is real and tangible to many of us, and I’m fed up with people feeding stigma with its trite treats of denial and apathy. Saying “times have changed” is a main course to stigma.

Walk in my shoes for a day and you would see things haven’t really changed. Intersectionality, the overlapping of discrimination, has an unpleasantly close relationship with HIV.

You could serve a smor- gasbord of HIV + poverty + BME + women + LGBTQ + groups that are so under the radar they are barely mentioned by the system.  These groups are stigmatised and living with stigma on a daily basis.

How can we really make a difference? It’s been over 30 years since the epidemic started affecting so many communities. I want to say to the world that we need to eradicate stigma with kindness and openness.

To mark last year’s World AIDS Day 2016, I set out to take steps towards reaching this goal. I went to Trafalgar Square to ask strangers to give me a hug with the tantalising invitation ‘Hug me, I’m HIV positive.’

I truly believe what a real grass-roots activist once told me – “Stigma kills, not the virus.” The late Elizabeth Taylor said, “It’s bad enough people are dying of AIDS, but nobody should die of ignorance.”

That’s why I’m positive about being positive. Maybe the global route won’t reach enough people so we need to make this battle against stigma and ignorance personal. So let’s tackle it, one person at a time, and leave a very nasty taste in stigma’s mouth by spreading knowledge, experience, hope and hugs.

This year has been all about supporting people to access the facts about HIV, to break the myths, and on Saturday December 2nd my Forest Gate Pride Committee took part in a community initiative to do just that and also to share a few hugs.

 

Isaac Samuels, member of Think Local Act Personal’s National Co-production Advisory Group (NCAG)

National network calls for more ‘asset-based areas’ to transform communities and services

You can focus on what’s wrong with someone in terms of their health and social care but what if you focus on what’s ‘right’? A national network of community practitioners calls for all public sector professionals and commissioners to work with people’s ‘assets’ rather than their ‘deficits’ if they are to build strong communities and sustainable public services, according to a briefing published today.

The briefing gives a compelling case for why asset-based approaches should be the basis of all local area planning and service delivery and follows on from the launch of Engaging and Empowering communities in 2016, which gained support from national leaders, including NHS England CE Simon Stevens.

The Asset–Based Area briefing was compiled by Alex Fox, CE Shared Lives Plus and Chair of the Building Community Capacity network, hosted by Think Local Act Personal (TLAP), which is leading the way.

In it, Fox and the network offer practical guidance with a description of the ten features of an ‘asset-based area’ that nurtures people’s wellbeing, resilience and influence so that they become equal partners, not passive recipients to the organisations and people who respond to their needs. They also suggest a number of planning and support models that use asset-based thinking and have been operating for years in different areas and with differing degrees of take up and success -models ranging from Homeshare schemes, dementia friendly communities, Time-banking and others.

Alex Fox OBE, Chief Executive of Shared Lives Plus, said:

“During this period where there’s huge pressure on money available to local areas it is more important than ever that every area can find value and build the full range of resources and assets that could be available to it. This would require leaders and decision makers to see their role as working with, not for, people. Working in co-production with people with health and care needs is at the heart of all asset-based methods”.

Clenton Farquharson MBE, Chair of Think Local Act Personal board, said:

“I have nearly 15 years’ experience of arranging my own support and employ a Personal Assistant who enables me to live a full and active life including spending time with family and running a Disabled People’s User Led organisation called Community Navigator Service CIC, besides other interests and ambitions. I don’t want to be part of the lucky few, I want more people to be supported and facilitated to live the type of life I enjoy”

Angela Boyle, Head of Programmes, Coalition for Collaborative Care, said:

“There is clear evidence that building asset-based areas works. By bringing together people and organisations we can nurture stronger, healthier communities. This paper supports community leaders with practical tools and models to effectively utilise the powerful assets that already exist in their communities for improved health and wellbeing”

-End-

Leadership for Empowered & Healthy Communities Programme – recruiting now! 

Following the continued success of the Leadership for Empowered and Healthy Communities programme, Think Local Act Personal, one of the Coalition’s partners, have announced dates for the next cohort.

 This innovative programme explores how leaders can grow and nurture capacity in local communities to improve health and wellbeing and ensure better outcomes for people living with long-term conditions, disabled and older people.

 The programme is open to senior leaders and clinicians across health, social care and beyond who want to be part of a movement for change.  Participants will be encouraged to think radically about the role of ‘social capital’ in health and social care and the role of public service leadership in shaping the communities that citizens need and want.

The programme involves a series of one-day workshops, action learning sets, one-to-one leadership coaching sessions, a Myers-Briggs (MBTI) analysis of personality style and a specialist 360 degree feedback diagnostic. Participants will have the opportunity to learn about best practice as well as developing the leadership skills required to embed co-production into organisations and enable strong and empowered communities to grow and flourish.

Starting in June 2014, the programme is a joint venture between Thames Valley and Wessex NHS Leadership Academy, the National Skills Academy for Social Care, Skills for Care, Think Local Act Personal, the Association of Directors of Adult Social Services and the Local Government Association.  The programme was initiated in 2011 by Jo Cleary, chair of another Coalition partner – the College of Social Work, and has already run three times to much acclaim.

 The New Economics Foundation’s evaluation of the 2012 programme found, “The leadership course was regarded in positive terms unanimously by those that attended. It was described as “excellent”, “inspirational” and perhaps most crucially, has already led to new leadership behaviours in those attending….most of those who attended the course had already begun to transform their role or services is evidence of the extent to which the course inspired.”

 The dates are:

  • June 4th 2015
  • July 13th 2015
  • September 21st 2015
  • November 17th 2015
  • January 20th 2016
  • October 20th 2015
  • December 4th 2015
  • January 14th 2016

To find out more click here and to register your interest please email: cathy.timmis@lehc.org.uk .

Personalised Care and Support Planning Handbook Launched

The Coalition for Collaborative Care and NHS England have launched a new handbook focusing on new ways of working to provide the best care for people with long term conditions.

The ‘Personalised Care and Support Planning Handbook’ is designed to spark new thinking amongst health and care practitioners about the best ways to locally implement personalised care and support planning.
The handbook provides practical support for local health systems hoping to introduce and sustain care and support planning at a local level and give people with long term conditions more control over their lives.

We know that evidence shows people living with long term conditions who have the opportunity to co-design their care within the wider context of their lives, have significantly better outcomes. Yet, just 5.4% of people living with such conditions in the UK report having an agreed care plan.

We have published this handbook which contains practical guidance, case studies and evidence in the hope that it will help health practitioners and commissioners understand how best to introduce personalised care and support planning.

The handbook complements a guide published by Think Local Act Personal (TLAP) and a short film published by the Royal College of General Practitioners (RCGP).

Professor Nigel Mathers, Honorary Secretary of the Royal College of General Practitioners and Chair of the Coalition for Collaborative Care said: “There is significant evidence which tells us that people who have personalised care and support plans self-manage their conditions much more effectively.
“There is improved monitoring of their health and care, fewer medical interventions are required and there is often less unnecessary use of medication.

“To make personalised care and support planning a reality for the 15 million people in the UK living with long term conditions requires significant changes in systems, relationships and services.
“We are committed to working with the coalition’s members and partners to create the conditions for these changes to take place. We whole-heartedly believe that personalised care and support planning sits at the very heart of person-centred, co-ordinated care.

“The handbook provides an introduction to personalised care and support planning so that individuals with key local responsibilities for the future of the health service can reflect and think innovatively about local approaches to implementation.” A copy of the handbook can be downloaded here.

David Paynton, one of the members of the Coalition’s Partners Group and National Clinical Lead for the RCGP Centre for Commissioning, talks about personalised care and support planning in practice in his recent blog post.

New resources available on care and support planning

Today, the Think Local Act Personal (TLAP) Partnership publishes new advice for councils on meeting Care Act 2014 requirements to ensure people, families and carers lead development of their own care and support plans.  This complements the care and support planning animation published by the Royal College of General Practitioners (RCGP) on Friday 16th January and the Coalition for Collaborative Care/NHS England handbook to be published later this week.

TLAP’s ‘Delivering Care and Support Planning’ has been developed with people who use services to show what good care and support planning looks like in practice.  It is backed up with examples from councils across England who are leading the way in this area. It describes the principles for what people want in a care and support planning process, the elements that need to be in place and recommendations for councils so they can be both Care Act compliant and person-centred in their approach.

The RCGP’s film brings care and support planning to life in a three-minute video animation, narrated by RCGP President ,Professor Mike Pringle.  It depicts a typical 10-minute GP consultation with a person who has multiple and complex illnesses and how care and support planning could lead to much better outcomes for everyone involved. The animation demonstrates how doctors can save time and improve health and social outcomes for people with long term conditions, noting the key role that carers, families and the wider community play in ensuring good person-centred care.

The guide & template support plans can be downloaded from the TLAP website here.

The animation can be viewed on the RCGP website or via  Youtube.

 

C4CC Newsletter – December 2014

Launch of the C4CC Vision

At the Future of Health conference, the Coalition launched its vision – ‘A Better Deal for People with Long-Term Conditions’.

The vision was well-received at the conference. Martin Routledge, Director of the Coalition and Fiona Carey, one of the founding members of the C4CC Coproduction Group, outlined how the Coalition would support those committed to making person-centred care a reality for people with long-term conditions. To celebrate the occasion, a special Coalition cake was cut by members of the Hub Team, Coproduction and Steering Groups.

Throughout the day, we captured ideas and thoughts on what a new deal for people with long-term conditions should look like on a graphic wall. What started out as a blank canvas quickly ended up becoming a mural of inspiration for person-centred care and gave us many ideas on how the Coalition could champion collaborative care. We’d like to say thank to all those people at the conference who visited the C4CC stand.

To see photos and tweets from the C4CC launch (including snapshots of the final graphic wall), check out our Storify feed here.

Think Local Act Personal Annual Conference

Following Future of Health, the Coalition facilitated a session at TLAP’s annual conference – ‘Personalisation in Health and Social Care – the Next Stage’ in Liverpool. This was a great opportunity to showcase how we will work alongside TLAP to champion person-centred care. The role TLAP has contributed to the design of the Coalition. C4CC presents the opportunity to bring organisations and people from the health sector into much greater engagement with social care.

Richard Cross, one of our Co-production Group members, opened the workshop with a talk about his experiences of being a carer and the importance collaborative care can play in this role. Martin Routledge and Catherine Wilton led the workshop, with support from Sam Bennett (TLAP Programme Director), focussing on the Coalition’s key priorities and how we will work in partnership with Think Local Act Personal to strengthen the message and reality of personalisation in the NHS for people living with long-term conditions.

The presentation from the C4CC workshop is available here, with further information on the conference available on the TLAP website.

Future Coalition Activity

As outlined in our vision, the Coalition wants to make person-centred care the norm and improve the relationships people have in their day-to-day interactions with health and social care professionals.

We are currently finalising our work programmes which will focus on two key streams of activity – ‘supporting practice, people and communities’ and ‘creating the conditions’. In the New Year, we will be sharing further details of these programmes.


Share good practice or make a suggestion

We are always looking to share good practice, ideas, resources and other material relating to the work of C4CC and person-centred collaborative care. We’re always happy to receive your ideas on where we should be focusing our efforts and resources to ensure we have maximum impact. Get in touch with the Coalition here.