Robert Johnstone

Robert Johnstone

Robert was diagnosed with Rheumatoid Arthritis at three years old. Initially he felt he was very much a passive recipient of health care, but while at university in the 70s, he began to take more responsibility for his life, and is now an active self-manager.

His health has not allowed him to enter a full or part-time conventional career, but since the early 90s, he has been actively involved in a voluntary capacity, as a representative and campaigner on behalf of disabled people and those with chronic health needs.

Robert is part of numerous groups and on a local, regional and national level supporting co-production and patient advocacy. He is also active in National Voices as a member of their Long-Term Conditions Group and is board member of the European Patients Forum (EPF) and the International Alliance of Patients Organisations (IAPO).

Robert was also involved in the early set-up work for the Coalition for Collaborative Care (C4CC) and is passionate about bringing the patient’s voice back into the process, to make healthcare a warm human experience and improving cost effective care.

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