We officially launch our vision for the future at the ‘Future of Health’ conference in London today (Friday 21 November).
Our coalition creates a major new alliance which is committed to improving care and support for people with long-term conditions. We are bringing together some of the sector’s most influential national groups and organisations alongside people living with long-term health conditions to champion a system-wide transformation in how they receive and use care and support.
Our vision for the future focuses on re-framing the relationship between a person with long-term health conditions and the professionals supporting them. This allows the expertise of both to be used most effectively to help the person plan to manage their condition and maximise their well-being. It will draw strongly on the House of Care developed by the Year of Care Partnerships which highlights what is required to achieve person-centred coordinated care. You can read more about our vision by downloading the paper below (also in Easy Read or by watching our short film:
Director of the Coalition for Collaborative Care, Martin Routledge, said: “We want the Coalition to light the blue touch paper for big changes in how people with long-term conditions and professionals work together to produce better lives. Today, we have launched our Vision for the Future but of course the future has to start now. There is huge potential for people’s expertise to come together in new and better ways that improve outcomes. But this is accompanied by frustration that the promising practice that can be seen in patches around the country is not quickly becoming mainstream.
“C4CC wants to work with those determined to move person-centred collaborative care from the margins to the centre of practice and experience. We are confident that the unique nature of our coalition – bringing key organisations and people from across the system and with lived experience into the room together with a clear focus and purpose – models the change we are trying to make. We believe we can have a real impact.”
There is good evidence to suggest that engaging with people with long-term conditions to co-design their care, leads to better outcomes and more successful independent living. We aim to ensure that professionals and people have the right support, knowledge, skills, power and confidence to achieve this.
Fiona Carey from the Coalition’s Co-production group, said: For me, person-centred care is about two things. First, it means healthcare professionals seeing me as a whole person with a productive and complex life rather than a series of single conditions. Most of the time I manage my own care myself and while I truly value the expertise of healthcare professionals they need to make the most of, and value, my expertise and experience.
“Second, systems and budgets need to be much more joined-up. Explaining repeatedly, and ‘dealing’ with disparate services, wastes everybody’s time and resources and doesn’t help anyone.”
Halima Khan, Director of the Innovation Lab, Nesta said: “We want to create a better deal for people living with long-term health conditions. The Coalition will support a change in the relationship between professionals and those living with long term conditions – a change that will support a more collaborative approach that allows the patient to be more in control of their own health. These initial conversations can then pave the way for access to a whole range of additional social solutions – such as peer support – which enable people to live much better with their condition.
“The Coalition provides the opportunity for the sector to make a real difference to people’s lives. We know that the changes required of the health system are beyond the remit of any one, single organisation. We have to work together. This is fundamentally about re-designing the health system for the 21st century. ”
Our vision also puts a strong emphasis on a much more holistic approach in which there is less focus on a person’s condition in isolation and more on the full spectrum of support that is required to enable people to be included in and play active, valued roles within their own communities – an approach developed by Nesta in its People Powered Health programme and often called ‘More than Medicine’.
But achieving these challenging goals requires a big shift towards much greater use of these approaches to support people. Though some have been developed for a number of years now, they are still not happening at scale despite policy support and evidence showing they work.
David Pearson, Adass President and Board co-chair for Think Local Act Personal (TLAP), said: “In the future, the work of this Coalition has the potential to transform lives and make a huge difference to millions of people living in this country. It’s absolutely right to focus our collective efforts across health and care to get the best outcomes for people and families regardless of their health condition or care and support needs. By linking with the Think Local Act Personal Partnership, we will ensure the Coalition builds on what we have learnt in implementing personalisation in social care.”
Bridget Turner, Director of Policy at Diabetes UK, said: “The Coalition is championing a complete change in the way in which care and support is provided to those living with long-term conditions. The voluntary sector has a crucial role to play in promoting and supporting this transformation.
“We know that the whole package of care required by someone living with long-term health conditions such as diabetes relies on good conversations to identify individual’s needs and circumstances and work together to agree goals and priorities. High quality clinical care is important, but there is also a need to think much more broadly about signposting to the wide range of community and support solutions which can make a significant difference to quality of life, health and wellbeing.
“The Coalition has an important role in shaping and implementing these changes, by working more closely across sectors and, of course, with people who are living with long-term conditions.”
Our coalition will take action in support of professionals keen to develop their practice and people with long term conditions wanting to work differently with professionals. We will also take action to influence how professionals are trained, develop and share the evidence for new ways of working and seek to pull the policy and system levers that shape professional practice.
Sam Bennett, TLAP director, said: “TLAP has worked hard to extend its influence in the NHS because we recognise the whole heath and care system needs to change so people, carers and families have more control and can live more independently. We welcome C4CC’s arrival and will forge a strong partnership to align our respective goals and practically deliver on our shared ambitions.”
Nigel Mathers, Honorary Secretary of the Royal College of General Practitioners and convening chair of the Coalition, said: “As a GP, 50% of all our consultations are now taken up by people with long-term conditions. The consistent message from our patients is that they want better partnerships with us, particularly those who have long-term conditions.
“The Coalition for Collaborative Care brings together a wide range of organisations committed to making this change. We want to transform the way we currently support people with long-term conditions by building the ‘House of Care’ in every community. We hope the synergy created by working together will help us to embed this, and other initiatives designed to support self-management and share decisions with our patients, into every day clinical care in the NHS. The more people and organisations we have in the coalition, the better and I hope to welcome many more to our number over the coming weeks and months.”
By bringing together and enabling partnership working between leading organisations in health, social care, the voluntary sector and people living with long-term conditions, we are aiming to build joined up, powerful momentum – supporting those determined to make person-centred collaborative care a reality for everyone.
Download the vision paper (also available in Easy Read) below.
Find out how you can get involved and help make a difference to the lives of people with long-term conditions.