Category Archives: Personalised Care and Support Planning

Putting People at the Centre of their Own Care

Alice Maynard, chair of the guideline committee for C4CC partner NICE, says all the evidence points to the need for people to be given a real and effective voice in their own care.

Social care is very personal.

People have their own care needs and we must understand those needs to ensure people receive the best possible care, delivered in the way and at a time when they need it.

Care must be tailored, personalised and most importantly be centred on the person who’s accessing it, otherwise, how can you actually give someone a positive experience?

This is why, as a part of my role on the guideline committee at the National Institute for Health and Care Excellence (NICE), we’ve developed a new piece of guidance which looks at people’s experiences of social care and recommends that adults who need social care should be able to shape the care they receive so it fits around them and enables them to be the person they want to be.

It’s hugely important that people have a say in their own care.

Everyone is unique, we all have things we like or dislike and having our preferences respected, understood and met is what truly makes the difference when we receive care.

This was a key element of the guidance. It fundamentally recommends that people accessing social care services are treated with dignity, as human beings who have their own history and experience that shapes who they are.

Professionals assessing people’s needs must look at the person’s history, recognise their preferences and really understand how these can be factored in to the care they receive.

When we developed this guidance we had a clear aim – to help improve people’s experiences of social care. Being a person who uses social care myself, I know how it feels to be on the receiving end.

Often, it’s people who don’t receive care who make decisions on social care frameworks, processes and protocols, yet they may not understand the impact of their decisions.

It can be very challenging as a social care user to know what standard of care you should be expecting.

Should you let someone treat you a certain way that you might not think is right? Or can you say “please can you do it this way?”

To make sure people are cared for properly, health and social care must work effectively together.

But there are so many challenges the system is facing. Between 2010-2013 we saw Local Authorities’ total spending fall by 8% and this is projected to continue falling.

Just last year, The Health Foundation found that by 2030/2031 there will be a funding gap of £9.2bn for adult social care, a total of 40% of the projected budget.

Bearing this in mind, bringing these two systems together is now more important than ever before.

Ultimately, working together will mean those people accessing services receive the best quality care regardless of where that care comes from.

The guidance encourages social care practitioners to consider how the processes they use for assessing people’s needs and planning and delivering care can be tailored to individuals.

The committee worked carefully to find and examine the evidence, ensuring our recommendations were fair, honest and focused on actually improving people’s experience.

We wanted to make sure that people’s thoughts, views and opinions are heard so they can shape the care they receive.

It’s really important that those involved in social care services listen to people’s views.

I’m just hopeful that, by using our guidance those providing social care services will be able to make a real difference to people and ensure their experience of receiving care is a positive one.

C4CC Launches New Care and Support Planning Tool

One of the core aims of the Coalition for Collaborative Care (C4CC) is to ensure care and support planning is a mainstream activity and I hope that the launch of our new planning tool will make a real contribution to making that happen on the ground.

Progress front coverIt is vital that people with long-term conditions have the opportunity to have a conversation about what matters to them and to be seen as an equal partner in their care by those supporting them, in health and social care.  Many of our partners and co-production team have evidence and stories about the positive difference the right conversations can have on people’s wellbeing, in achieving the outcomes that are important to them and on their confidence in taking control of their own health.

C4CC wants care and support planning to be available to everyone with a long-term condition and not just the “lucky few.” This tool has the potential to ingrain this best practice across the entire health and social care sector, providing organisations with a baseline starting point and the ability to continually assess their progress.

The toolkit has come about as a result of extensive work with C4CC partners such as the Alzheimer’s Society and Royal College of GPs, because they recognise the value of those conversations in achieving a better deal for people with long-term conditions.  This partnership approach will also be vital as we look to make its use widespread and bring about the system change we are all so passionate about.

In the coming year we will be continuing to deliver training, development and awareness raising sessions around better conversations, using the strength and breadth of our networks to build this movement for change.  Please get in touch by emailing if you want to collaborate with us to help us keep up the momentum.