Category Archives: News

Two Exciting Grant Opportunities On Metrics and Financial Modelling for Person-Centred Care

Together with NHS England, we are inviting submissions from organisations to work on two key areas of person-centred care – financial modelling and the use of metrics.

One grant, up to the value of £100k is being offered for each project and we are looking for organisations who, (1) have the capability to identify, evaluate and support commissioners to use metrics to promote person-centred care for the growing proportion of the population with one or more long-term condition, and (2),  with the capability to develop and apply an approach to evaluate the financial case for person-centred care for people with specific, single long-term conditions and those with multi-morbidity.

Both projects should be completed on or prior to 31 March 2016.

The deadline for applications is Monday 21 December 2015 and a decision on the successful bids will be made week commencing 4 January 2016.

Applications and queries should be sent to england.longtermconditions@nhs.net

Each project has a full brief, outlining key deliverables, expected approach and scoring criteria.

For the full brief on the long-term conditions and end of life care metrics for person-centred care, click here.

For the full brief on financial modelling person-centred care for people with long-term conditions and multi-morbidity, click here.

Coalition for Collaborative Care at National Children and Adult Services Conference 2015

On Wednesday 14 October  to Friday 16 October 2015, the C4CC hub team will be at the National Children and Adult Services Conference (NCAS) 2015 at Bournemouth International Centre.

We’ll be at the NHS England stand, hosting two sessions on person-centred care and people-powered health – full details and timings are below.

If you’re at NCAS, please come and say hello – and talk to us about how you can join us by becoming a member.

Wednesday 14 October 2015 15:15 – 15:45

Session Title: Introducing the Coalition for Collaborative Care

Overview: People with long-term conditions are long due a better deal from the NHS.  Find out more about the Coalition for Collaborative Care, a partnership of more than 40 organisations in health seeking to drive forward personalisation, co-production and community-based approaches in health.

Thursday 15 October 2015 14:45-15:15

Session Title: What will it take for the NHS to become ‘People Powered’?

Overview: The NHS could save £4.4bn a year in England alone if it involved people and communities more directly in the design and delivery of services, according to Nesta’s People Powered Health programme.  Join the Coalition for Collaborative Care for a lively debate and discussion about integration, co-production, leadership and place-based thinking.

We look forward to seeing you there.

New Publication and Webinar from the Royal College of General Practitioners (RCGP)

The Clinical Innovation and Research Centre at the RCGP launched their new guidance: ‘Stepping Forward: commissioning principles for collaborative care and support planning’ at this year’s annual conference.

The guidance builds upon the thinking of the 2011 RCGP report ‘Care Planning: Improving the Lives of People with Long term Conditions’ and the RCGP ‘Inquiry into patient centred care’. We set out a vision where primary care teams are given the time and space to take a population-based view, and work proactively to improve outcomes and reduce health inequalities for their patients.

We envisage all health care professionals becoming enthusiastic about working in partnership with people and their carers, and with other organisations and the wider community. This would ensure an integrated way of working and to achieve truly personalised, proactive, person-centred care.

Recognising there is no ‘one-size fits all’ approach, we seek to provide non-prescriptive recommendations, upon which Clinical Commissioning Groups (CCGs) and local authorities can embed collaborative care and support planning (CC&SP) as the core component of their models of care for people with long-term conditions. We provide some principles and pragmatic building blocks for delivery, illustrating these with case studies from CCGs around the country.

The Royal College of General Practitioners (RCGP) and NHS Clinical Commissioners (NHSCC) are running a webinar to accompany the launch of the guide ‘

Chaired by Julie Wood, Chief Executive of NHSCC, the webinar will explore the experiences of two organisations that have implemented care and support planning in different ways. Participants will hear first hand some of the challenges and the rewards of introducing this new way of working before we open up an interactive Q and A session. Collaborative care and support planning requires an investment and leadership. Effective partnership working is still fairly new to the NHS and so we are all ‘learning by doing’. This webinar seeks to share some of that learning and encourage others to take the initiative forward.

To book your place please click here.

New Coalition for Collaborative Care (C4CC) Co-Chair Announced

Fiona Carey, a member of C4CC’s Co-production Group, has been appointed as the Co-Chair of the Coalition for Collaborative Care.

Joining Fiona as C4CC Shadow Co-Chairs are Trevor Fossey and Lisa Bittles, also both members of C4CC’s Co-production Group.

Fiona will work with the other co-chair, Professor Nigel Mathers, who previously held the post of Interim Chair of C4CC and is Honorary Secretary of the Royal College of General Practitioners. Together Fiona and Nigel will support the delivery of the Coalition’s strategic objectives, drive progress on the strategy and work programme and guide engagement with partners, members and subscribers.

Newly appointed C4CC Co-Chair Fiona Carey said: “Co-production is necessary, gaining ground, easy to do badly and hard to do well. As a patient with, frankly, too much experience of the NHS, I’ve long been a proponent of patient-centred care. C4CC is not only championing the idea of co-production and collaboration; it is modelling it brilliantly in all its work and projects. So I’m delighted to be part of the team, and I’m looking forward to carrying forward the experiences and views of my fellow patients and carers.”

Martin Routledge, C4CC Director explains why it is important for the Coalition to be led by someone with lived experience of long-term conditions: “I am delighted at the appointment of Fiona as co-chair of the steering group for C4CC and Trevor and Lisa to the roles of shadow co-chair and look forward to them overseeing the activity of the Coalition alongside Nigel.

“There is a long way to go before genuine co-production – people with long term health conditions co-designing and steering health and care at all levels – is truly embedded. C4CC is determined to play a part in this, and with people of the calibre of Fiona, Trevor and Lisa steering our work we are confident we can.”

C4CC Co-Chair Nigel Mathers said: “I really welcome this development. Patients and carers have such a massive amount of experience and expertise to contribute. This is a really positive step – doing co-production at the core of our values, and it will help to deliver our mission to spread the practice of co-production far and wide into the NHS.”

The role was exclusively offered to members of the existing C4CC Co-production Group, who have lived experience of long-term conditions, either living with their own or caring for someone with a long-term condition.
Other requirements for the role included experience of chairing board meetings or groups at any level, an understanding of the current issues and systems within which the Coalition works and a commitment to equality and inclusion of people from diverse backgrounds.

Fiona and Nigel will both attend each of the C4CC Steering Group meetings, which take place every six weeks.
Progress reports compiled by C4CC for each of the meetings can be found here.

C4CC at NHS Health and Care Innovation Expo 2015

In one week’s time, the NHS Health and Care Innovation Expo 2015 will officially be open.

Considered the main event in the health and social care calendar, 5000 people are expected to visit Manchester’s Convention Centre each day, to learn and share ideas and innovations that can transform the health service both now and in the future.

The Coalition for Collaborative Care will have a strong presence at this year’s event. We will have a stand (number seven), where people can come and learn more about the work we are doing and plan to do, and how they can help.

On day one, Wednesday 2 September, at 2pm, we will be hosting a pop-up university session at Pop Up Uni 2  on C4CC and how we are working towards a better deal for people with long-term conditions. This session will be run by Catherine Wilton, C4CC Deputy Director, Trevor Fossey, C4CC Co-production group member and Keymn Whervin, Expo People’s Panel Member.

Also on day one at 3pm, C4CC Director, Martin Routledge will be chairing a pop up university session  at Pop Up Uni 9 on New Care Models: new ways of delivering prevention and self-care services for patients.

On the second day, Thursday 3 September at 10am, we will be hosting a panel session on the Innovate Stage with Dr Martin McShane, National Medical Director, NHS England, Martin Routledge, Director C4CC, Dr Karen Eastman, Clinical Director Long-Term Conditions, Health and Wellbeing Board and Planned Care, Horsham and Mid-Sussex CCG, Kirit Mistry, Expo People’s Panel member and Christine Morgan, C4CC Co-production group member.

It would be great to see you all there – please do come and say hello whenever you have the opportunity.

Building Community Capacity – Regional Events

Our partner, Think Local, Act Personal (TLAP) is working with C4CC, Public Health England, NHS England and NHS Alliance to provide a series of regional events on the topic of building community capacity.

The event is aimed at Health and Wellbeing Boards, NHS England Commissioners, NHS Providers of Community Services and Voluntary Sector Providers. They are encouraging several representatives from each locality to attend, including citizen and voluntary sector representation. This approach will enable focused discussion and support the development of a local action plan.

The events will provide:

– An understanding of the key research, evidence and practice that supports building community capacity

– The experience of co-producing a community capacity building action plan based on local priorities

– An agreement on further support for embedding the action plan

The events will run from 2 July – 14 July across the country.

For more information click here or to book a place at one of the events, click here.

 

C4CC Welcomes Influential New Partners to Strengthen Our Alliance For Change

The Coalition for Collaborative Care (C4CC) has almost tripled its partnership strength in just five months.

Since its launch in November 2014, C4CC has been working hard to create an alliance of strong, like-minded organisations, who together with people living with or supporting people with long-term conditions, can act make person-centred care and support a reality.

Martin Routledge, Director of Coalition for Collaborative Care said: “This substantial increase in the number of influential national organisations wanting to work alongside us just highlights the desire for change across health, care and beyond. Partners will both impact at a national level and also support our increasing membership of people and groups at local level to help realise the vision of a new deal for people with long-term conditions.

Professor Nigel Mathers, Honorary Secretary of the Royal College of General Practitioners and Chair of the Coalition for Collaborative Care said: “Partners in the Coalition are integral to making this work. By coming together, we bring a vast breadth of experience, influence and willingness to make the changes that need to happen.

“As a Coalition, we can make a difference across the health system for people living with, or caring for those with long-term conditions. All the partners, both new and those that founded C4CC, can help to extend our reach and influence, and embed the principles of person-centred care at all levels of the system.”

Howard Duff, Director of England Royal Pharmaceutical Society said: “We are really pleased to be a new partner of the Coalition for Collaborative Care. People with long term conditions have told us they would like more support from pharmacists with their medicines. As a partner we are looking forward to sharing our knowledge and expertise with C4CC and improve patient care. We will be taking the people centred approach to care and applying this to everything we do.”

Karin Tancock, Professional Affairs Officer at the College of Occupational Therapists said: “The College of Occupational Therapists is proud to announce its new partnership with the Coalition for Collaborative Care.   Occupational therapists work with people with long term conditions, enabling them to manage their condition independently and continue doing the activities that are important to them. We look forward to working with leaders in health and social care to achieve person centred and coordinated care for people with long term conditions giving them more choice and control in their day to day lives.”

Richard Cross, a member of C4CC’s Co-Production Group said, “As a carer for more than 25 years, I have experienced first-hand enough negative issues. Now as a member of the C4CC Co-production group, it is fabulous to sit in a room with so many influential people from a variety of organisations, who have the power to make the changes necessary that will help those of us in long-term caring achieve the support and recognition we want, but never thought would happen.”

The current 40 partners feature organisations from across health and social care, charities, professional associations and community and voluntary organisations. Each of the partners will make a direct contribution to the work of the Coalition and can offer a mixture of expertise, professional, policy and leadership support, workforce support, or third party, charity and provider knowledge.

Our partners will work together through the Coalition and significantly, guided by people with lived experience of long-term conditions, to help make person-centred care the norm, not the exception.

C4CC continues to be in contact with a number of additional organisations who have expressed an interest in becoming partners, and a second wave of new partners is expected to be announced later this year.

The full list of our partners can be found on the Coalition for Collaborative Care website.

Leadership for Empowered & Healthy Communities Programme – recruiting now! 

Following the continued success of the Leadership for Empowered and Healthy Communities programme, Think Local Act Personal, one of the Coalition’s partners, have announced dates for the next cohort.

 This innovative programme explores how leaders can grow and nurture capacity in local communities to improve health and wellbeing and ensure better outcomes for people living with long-term conditions, disabled and older people.

 The programme is open to senior leaders and clinicians across health, social care and beyond who want to be part of a movement for change.  Participants will be encouraged to think radically about the role of ‘social capital’ in health and social care and the role of public service leadership in shaping the communities that citizens need and want.

The programme involves a series of one-day workshops, action learning sets, one-to-one leadership coaching sessions, a Myers-Briggs (MBTI) analysis of personality style and a specialist 360 degree feedback diagnostic. Participants will have the opportunity to learn about best practice as well as developing the leadership skills required to embed co-production into organisations and enable strong and empowered communities to grow and flourish.

Starting in June 2014, the programme is a joint venture between Thames Valley and Wessex NHS Leadership Academy, the National Skills Academy for Social Care, Skills for Care, Think Local Act Personal, the Association of Directors of Adult Social Services and the Local Government Association.  The programme was initiated in 2011 by Jo Cleary, chair of another Coalition partner – the College of Social Work, and has already run three times to much acclaim.

 The New Economics Foundation’s evaluation of the 2012 programme found, “The leadership course was regarded in positive terms unanimously by those that attended. It was described as “excellent”, “inspirational” and perhaps most crucially, has already led to new leadership behaviours in those attending….most of those who attended the course had already begun to transform their role or services is evidence of the extent to which the course inspired.”

 The dates are:

  • June 4th 2015
  • July 13th 2015
  • September 21st 2015
  • November 17th 2015
  • January 20th 2016
  • October 20th 2015
  • December 4th 2015
  • January 14th 2016

To find out more click here and to register your interest please email: cathy.timmis@lehc.org.uk .

C4CC continues to extend its reach

The New Year has brought fresh opportunities for the Coalition to extend its reach and grow the national movement towards a better deal for people with long-term conditions.

We attended the Long-Term Conditions Conference at the QEII Conference Centre in London on 22nd January 2015 to run a session focusing on the Coalition’s work.

Our stand received a steady stream of visitors from across the health and care professions, all keen to hear more about our vision and to ask questions about the Coalition.  Catherine Wilton, Deputy Director of the Coalition for Collaborative Care, also led a workshop attended by almost 90 practitioners, carefully co-designed and co-delivered with four members of our Co-production Group – Evelyn Bitcon, Richard Cross, Neeta Mehta and Fiona Carey.

The workshop explored what it would take to make person-centred, collaborative care a reality across the country and introduced our recently published Care and Support Planning handbook. Co-production Group members also shared personal stories.

Richard shared his experiences of caring for his wife.  Neeta talked about becoming an expert in the care of her daughter, despite having a long-term condition herself.   As well as having a high profile slot in the main plenary session of the morning, Fiona opened the C4CC session and shared a story about her friend who was unable to avoid a hospital stay for her son as the system was not set up to provide the preventative care he needed. Evelyn talked about challenges she faces as a carer with the current health system when providing support to her son who has Post-Traumatic Stress Disorder.

Towards the end of the session, the participants were asked to write pledges – a commitment of what they would do to create the conditions for that to happen.

Strong themes across the pledges included becoming a member of the Coalition for Collaborative Care, working to educate others about the benefits of people-centred care, sharing ideas and best practice with one another and reviewing current policies and plans to remove barriers to good care and support planning.

Catherine Wilton said: “The conference was really encouraging. The conversations we had with health professionals indicated that there is a real appetite for changing how the health service as a whole needs responds to people with living with long-term conditions.

“Having a Co-production Group is an invaluable part of our approach and their experiences help to shape our vision for the future.  A number of healthcare professionals in the workshop mentioned how powerful and impactive they found hearing from our Co-production Group members.

“Nearly 60 more people joined the Coalition on the day of the conference which is great news as it continues to extend our reach and create the possibility of achieving our vision for the future.”

To view our Vision document please click here.

 

Janet’s story: life with a personalised care plan

Janet Brown lives in Nottingham with her husband. She has Multiple Sclerosis, ME and Fibromyalgia. Here she tells her story of life with and without a personalised care plan.

Before 2007 I was a successful, outgoing, well-connected business consultant.  I was involved in regeneration work which I loved, I had written a book and I took every opportunity I could to travel. In short, I was loving life.

But in 2007, everything changed.  My ME suddenly deteriorated. With a number of neurological conditions overlapping, life became very difficult.  I couldn’t walk; my balance completely evaporated and I found simple tasks like getting in and out of bed unbearably difficult.

I looked to my GP to help. In fact, I looked to a number of consultants and healthcare professionals.  I was desperately clinging to the hope that I wouldn’t have to give up my job.  I needed to have a purpose in life.

My GP is very good but the only thing he could offer me was medication and the side effects of it were hugely debilitating.  I continued to accumulate more and more GP appointments until I eventually found myself embarrassed to be there.

So I retreated to my home where I became house-bound, in fact bed-bound, within two years. I lost my social links; I became isolated, unhappy and progressively more and more unwell. My muscles weakened further and I could feel myself declining into a fairly dire situation.  It’s upsetting to think back to that time because I ended up in a very dark place.

With my confidence at a particularly low ebb, I reached out to the ME Society in the hope that I would be able to speak with people via phone for support. Whilst support groups were available, regular phone contact wasn’t an option but the Society did tell me that the local Clinical Commissioning Group (CCG) were running a pilot to trial personalised care and support planning for people with ME. I realised that this could be just what I needed so I called the CCG,  which marked the beginning of an incredible journey for me.

Someone from the CCG came to visit me. They wanted to hear more about my situation and they approached me with such empathy and understanding. They assigned me a ‘broker’ – someone who would work with me to create my personalised care plan.

In our first meeting he started off by asking what was important to me; what were my core values; everything about me and my life. I was quite taken aback because those questions aren’t directly about health. But I now realise that he wanted to know what would motivate me to get up, get out and re-engage with life. When we eventually talked about the impact of my conditions, split down into physical and emotional well-being, we created an enormous cascading list, which was the basis from which we created my care plan. I found the process very easy.

Sometimes the process of care planning reveals that the person needs a service that is not currently provided. This was the case for Janet, whose CCG offered her a personal health budget as part of the care planning process. 

I was assigned a personal health budget which I was to manage myself, with some assistance, and it afforded me access to a vast range of things which went far beyond medication. Soon I was enrolled in physical therapies which improved my core strength and muscle control and provided significant pain relief which lasted weeks at a time. I was out and about, walking in a way that I hadn’t been in years. I saw a nutritionist who helped me to create a menu plan which alleviated some of my symptoms and gave me lots more energy.

Experiencing a loss of health with all that it entails can feel like a complete loss of identity and, I now realise, that the emotional effects had been having as significant an impact on me as the conditions themselves. Before the personal health budget, that purpose in life which I had tried to cling onto the early days was all but gone. When I was asked what made me happy, I didn’t have an answer. I couldn’t think of anything that would spark excitement, enjoyment or any kind of euphoric feeling in me. But my personal health budget addressed that too. As well as having relaxation therapy, I signed up for an art class – something which I had enjoyed decades before. Very quickly my zest for life returned. I found myself waking up at 3am, excited to get downstairs and begin my artwork. This year, I plan to enter a competition with some of my pieces which is quite an incredible turnaround from where I had been.

During the time that I had the personal health budget, I didn’t see my GP very often at all. Miraculously, I came off all medication and, without the side effects, felt better than I had done in years. I was managing my condition myself and it was very empowering. It was a win-win. I got my life back and the health service spent far, far less money and time on my care.

Sadly, the personal health budget pilot only lasted one year, and whilst I am trying to maintain some of what had been in place, the truth is that without the budget it is very difficult to achieve. My pain has flared back up and my balance is deteriorating. I now have a dedicated MS nurse, physiotherapist and an occupational therapist – none of which I required when the budget was in place. I see a pain consultant once a month and I am back on what I know to be very expensive medication.

Everyone wants to be well; no one wants to be sick for the rest of their days. I really believe that I have too much to offer to be bed-bound for the rest of my life. So I’ve got to fight for me and the personal health budget helped me to do that. I can’t tell you how much. It made the most tremendous difference.