The Coalition for Collaborative Care (C4CC) and the Leadership Academy ran three virtual roundtable events on 14th March aimed at building support and consensus for an approach to leadership for personalised care, co-production and community building.
Colleagues from the Personalised Care Group at NHS England joined the session together with representatives from Public Health England, Community Catalysts, Altogether Better, Macmillan, British Heart Foundation and a range of community-facing organisations, front-line leaders and citizen representatives also joined to engaged in lively debate and discussion.
At the heart of the roundtable was the question: What mindset, skills and behaviours do NHS leaders need to ensure that personalised care becomes part of the DNA of the NHS? And following on from that, what does that mean for the Leadership Academy and other organisations providing leadership development at support work at the level of neighbourhood, place and health system?
There was a great deal of consensus from the participants – getting personalised care to be widespread requires transformational change. We therefore need leaders who have tenacity, courage and a willingness to take on the pain of such bit change by working towards the greater good, across boundaries and are not just concerned with their own organisation. To get leaders to do that we need to ensure they are engaging with personalised care at a level of values and identity to ensure they have a personal connection with the vision. Leaders need to develop local, shared purpose and ensure that power is shared with people and communities. Leaders need a mindset of collaboration, not competition and to be able to think creatively and beyond NHS organisations for solutions. They need to inspire others and create the space for conversations about what matters at every level. There was a lot of talk about complex system leadership, the ability to adapt and flex, as well as the need for knowledge about how large scale change really happens – through connected networks, saying ‘yes to the mess’, to work with ‘emergence’ and that ‘those who do the work do the change’.
The outputs from the roundtables will feed into a set of recommendations for the Leadership Academy, and will shape the Personalised Care Group’s leadership development strategy moving into 2019-20.
If you would like to contribute to this work and share your views, please complete this short survey.
To find out more, please get in touch with Catherine Wilton at Catherine.email@example.com
For several years, the RCGP has been working with NHS England and key stakeholders to support GPs and primary care teams to deliver person-centred care. In that time, it has developed animations, toolkits, guides, FAQs, training videos and a network of person-centred care champions – just to name a few!
Over the next couple of months, the RCGP will be uploading updated definitions and standards, patient pathway exemplars for cancer, mental health, learning disabilities and diabetes as well as short case studies on how to make quick easy changes to implement person-centred care in practices.
In the meantime, a selection of current RCGP resources can be found below, please feel free to forward and share with your networks. The RCGP is also happy to collaborate on blogs and news articles to support and raise awareness of personalised care.
Animation on personalised care for people with long-term conditions
The RCGP PCC Network of Champions online and in-person network brings together GPs, primary care colleagues and people with lived experience who share an enthusiasm for person-centred approaches to health and well-being. The network aims to promote person-centred care approaches in members’ own localities, feed into national pieces of work, represent the RCGP regionally and nationally for PCC among other activities.
What’s the best way to support someone who’s too well to stay in hospital, but not quite well enough to go home?
This is a question that Shared Lives Plus has been working on for the past three years. Together with members, healthcare professionals and hospital trusts, Shared Lives Plus has been developing a way of supporting people who need intermediate care.
They’ve created a short film about Ken who’s in precisely this boat.
Shared Lives intermediate care can provide a stepping stone between hospital and home and offers a natural-feeling home environment for people to recover from illness and regain independence. Through intermediate care, people are also supported to manage their long-term health condition and lead a healthier lifestyle. It’s particularly beneficial for people with mental ill health and people recovering from life changing health issues and those who need time to make longer-term arrangements.
Following the publication of the Universal Personalised Care model, C4CC partners Professor David Morris of the Centre for Citizenship and Communities at the University of Central Lancashire, and Dr Brian Fisher of the New NHS Alliance wrote to C4CC partners to invite discussions with other partners in a call to action to support the ambition in relation to community based approaches, and to develop further dialogue with James Sanderson and the Personalised Care Group about how this can be taken forward by C4CC partners.
In the letter, Brian and David said: We are pleased that community based approaches have featured in UPC and we also recognise there is much more work to do in this area. To this end, we have had a range of positive conversations highlighting how developing community approaches will only become a reality if its focus on the individual is balanced with one which includes a comprehensive approach to community-centred and community strengthening ways of working. This is important for prevention, local empowerment and health creation.
We therefore welcome UPC highlighting that local areas need to have “a whole-system strategy to develop community-based approaches”. We know that this community level perspective is of fundamental importance to the success of personalised care and the allied policy on social prescribing”.
A number of partners gathered together to have a short discussion at the Partners Day on 14 February, and a further date to meet has been agreed to enable a more detailed discussion. If you are interested in contributing as this discussion develops, please contact Carey firstname.lastname@example.org
C4CC welcomes three new partners this month, Power to Change, Disability Rights UK and the National Association of Link Workers. The C4CC partnership now represents a broad mix of more than 60 organisations all committed to working together to ensuring better personalised care in health services.
Disability Rights UK (DR UK) is an organisation led by people with lived experience across the spectrum of disability and health conditions, including mental health conditions, learning disabilities, dementia and autism. They are a pan disability membership organisation led by disabled people seeking change. Its membership includes individual disabled people and organisations working on their behalf including disabled people led organisations. Among its membership are over three hundred organisations that give advice directly to disabled people, particularly in respect of benefit issues.
Sue Bott, Deputy Chief Executive, Disability Rights UK said: “We are delighted to be signed up as partners with C4CC. Together we will promote our shared values of co-production and autonomy for and with people who need support.”
Power to Change is the independent trust that supports community businesses in England. Community businesses are locally rooted, community-led, trade for community benefit and make life better for local people. From pubs to libraries; shops to bakeries; swimming pools to solar farms; community businesses are creating great products and services, providing employment and training and transforming lives. Power to Change received its endowment from the National Lottery Community Fund in 2015.
Susie Finlayson, Development Manager at Power to Change, said: “Power to Change is pleased to join the Coalition for Collaborative Care to contribute to driving forward the shift to more personalised care for people with long-term conditions. We are excited to work with the individuals and organisations in the partnership and believe that community businesses can play a part in changing the system to work better for the people who need it.”
The National Association of Link Workers (NALW) is the only national professional network for social prescribing link workers in the UK. It is an independent grassroot social movement and community of practice for link workers.
Christiana Melam, CEO National Association of Lin Workers, said: “The National Association of Link Workers is delighted to join the Coalition of Collaborative Care. We look forward to working together with partners to mainstream ‘gold standard’ universal social prescribing in order to realise the positive outcomes it can provide for the person, their families, friends and community as well as the reduction in the inappropriate use of health and social care services.”
On 21 February 2019 the Department of Health and Social Care published the consultation response on extending legal rights for personal health budgets and integrated budgets.
In doing this, Caroline Dinenage, Minister for Care, announced the first new areas which will have a legal right to a personal health budget. These are for people eligible for an NHS wheelchair and people who access after care services under section 117 of the Mental Health Act.
This announcement supports the commitment in the NHS Long Term plan that up to 200,000 people will have access to a personal health budget by 2024. It extends the legal ‘right to have’ beyond NHS Continuing Healthcare (CHC) and Children and Young People’s Continuing Care.
The announcement signals the intent to CCGs who should now be preparing for the legal rights to come into force. Work is now underway to include these rights in legislation and it is anticipated this could be in place as early as Autumn 2019.
NHS England has commissioned Quality Health to run a survey from 14 March to 14 May 2019 to gather feedback about people’s experiences of personal health budgets and integrated personal budgets.
It is open to all current or previous budget holders and those who support them, including those who responded last year, and, for the first time, will separate out wheelchair budgets from other types of personal health budget.
As a result of the 2018 survey, NHS England has:
Started a new project to explore the challenges you face with recruiting and employing personal assistants
Launched #myPHBstory as a Twitter hashtag to capture and share people’s stories
Executed a series of eight regional workshops across the country to commissioners to help them improve their personal health budgets for NHS Continuing Healthcare – co-produced and co-delivered with people with lived experience of personal health budgets
Developed long-term plans to offer better information, advice and support for those entitled to or interested in a personal health budget (p10, action 18)
Committed to training more people with lived experience to influence systems and support individuals
Are identifying more ways to improve the quality of information available to personal health budget holders and commissioners who support personal health budgets
The findings will again be used to improve the support for budget holders and applicants in England.
Please share the link widely, using the hashtag #NHSPHB or tagging @NHSPHB, to make sure everyone’s views are represented.
The NHS Long Term Plan (LTP) says that the time has come to give people the same choice and control over their mental and physical health that they have come to expect in every other part of their life.
Universal Personalised Care sets out the plan for achieving this change. It establishes the comprehensive personalised care model with six evidence-based programmes of work and details how the NHS can support people of all ages, and their carers, to manage their physical and mental health and wellbeing, build community resilience, and make informed decisions and choices when their health changes.
Responses to the plan from C4CC’s partners can be found below. We will add to this page as more come through.
C4CC’s response can be read here, and our co-chair Anna Severwright has also written a blog post sharing her thoughts on how Universal Personalised Care provides the opportunity to move personalised care from the margins to the mainstream.
C4CC’s co-chair, Anna Severwright blogs about the launch of the action plan for Universal Personalised Care.
I recently took part in a panel discussion along with my co-chair Nigel Mathers, responding to the question of ‘what will success look like for personalised care in the next two years?’
Held at the Royal College of General Practitioners earlier this month, the event was a pre-briefing ahead of today’s launch of the action plan for Universal Personalised Care.
I think it’s fair to say that the consensus from all panellists was that in two years’ time it will be too early to see the full effects of what is an ambitious action plan and such a significant change in the way that most people – and their carers – currently experience our health care system.
The changes set out in the plan launched today will take time and it will be a long journey. Much has been achieved already but this has been for the minority. This plan gives us a real opportunity to move personalised care from the margins to the mainstream and move from benefiting thousands of people – to millions of people.
As someone with multiple long-term conditions, my healthcare experiences have ranged from the very impersonal – only being asked about my clinical symptoms – to a completely different conversation that covers my whole life and what’s important to me. When I have this different type of conversation the impact is huge, not just on my health, but on my general wellbeing and on my ability to be able to live the kind of life that I want to.
But it’s not just about the content of the conversation and the questions asked, it’s about the nature of the conversation and it being a genuine partnership between healthcare professionals and people and their carers. There needs to be the recognition that people are experts in their own lives and conditions. So much more can be achieved and a bigger difference made to people’s lives if we use both the patients’ and professionals’ respective knowledge to jointly create their care and support plan.
For personalised care to really take root however, it’s essential that services and approaches are co-produced with people, communities and the workforce. Only then will we see the kind of culture shift and level of transformation required.
The action plan for Universal Personalised Care represents a tipping point for us all. I am incredibly proud to be co-chair of C4CC and to have the privilege of working with our network of partners who are all committed to supporting these plans and making personalised care happen at scale. So maybe it’s true that two years will be too early to see full success, but I look forward to seeing the progress being made towards personalised care moving from the margins to the mainstream.